The Loving Loic Foundation is deeply honored to receive a generous donation from Stichting Seppe, a foundation born from love, hope, and the determination to improve the lives of children affected by PKAN and related NBIA disorders.

Over the last several months I’ve had the opportunity and pleasure of getting to know Alison Rockett. The God and the universe were at work in bringing us together.

Since the 4th of July we have been enjoying summer in Montana on Flathead Lake…

I never really liked the song, but now I really don’t. 

It has been 2-weeks since Loic’s diagnosis. I spent the first 4 days crying and the next 4 days in shock.

May 25, 2023 was the worst day of my life. Until now, I have had a very blessed life. A very normal life.